Monthly Archives: May 2016

Cerebellar ataxia and me: trying to live while the brain is dying

Spinocerebellar ataxia sucks the joy out of another day…

As I have mentioned before, I have a degenerative brain condition. It’s called spinocerebellar ataxia, and is essentially an atrophying of the portion of the brain that coordinates and regulates muscular activity. If you read the details at NIH you’ll probably understand pretty quickly just how nasty it really is. It has taken away a lot of what I love in life and is, for now, uncurable. For the most part, there is also no treatment for the symptoms.

My doctors at the University of Colorado Health Center are some of the best in the business, and we have had frank conversations about what this disease means for me. Read more